1 in 7 women* in Australia are living with endo, and it takes an average of 7 years to get diagnosed. That's 7 years of being told it's all in your head, of being sent home with painkillers, and of missing out on life while the medical system fails you over and over again.
Through BODIES OF A BROKEN SYSTEM, we're creating a platform where every story matters and every experience counts. Nobody has to walk alone. By standing together, we're turning personal suffering into collective power—demanding the care, research, and recognition that's long overdue.
your stories
“I had taken so many pain killers for my ‘period pain’ that I ended up in the emergency room in excruciating pain. The doctor explained that the amount of period pain was not normal and referred me to a gynaecologist. After a laparoscopy, a 4 hour surgery, 4 days in hospital and 2 weeks of tough recovery at home… I finally knew it wasn’t just period pain. After 22 years.”
Rach
Read More stories"I was diagnosed with endometriosis in 2013. I’ve had over 16 operations, some of which have involved removing parts of my organs. I’ve lost so much of my bowel and had my bladder resected and I know that didn’t actually have to happen. The system needs to work better so this disease isn’t progressing whilst people wait to be seen by a specialist, have surgery or generally be given the care they need."
Alice
Read More stories“I have been in pain for as long as I can remember. I would pass out during each period, and the bleeding was so heavy that I had to change my pad every two hours. It took over 20 years, but in 2022 I was diagnosed with stage 4 endometriosis and adenomyosis.”
Anonymous
Read More storiesendo Resource hub
EndoKind Guest Blog: The emotional toll of chronic pain
From Pain to Pleasure: Rethinking Sex With Endo
Astrid and Western Sydney University presents Endometriosis Clinical Trials
*At Astrid, while we use the term 'women' in our endometriosis campaign, we recognise this reflects common but incomplete medical terminology. Endometriosis can affect people across the gender spectrum, and conventional language often fails to acknowledge this reality. We welcome and support all individuals affected by endometriosis, regardless of gender identity.
